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![]() Juanita's Story
Juanita was born on June 1st, 1989. She made quite an entry being hastened into this world as her umbilical cord was wound three times around her neck. There was no cry, her eyes were open and her face calm. When she was one, the family moved from Lutwyche to Sheldon. In the early days at Sheldon, the family attended Capalaba Uniting Church, and Juanita went to Sunday school with Sharon. She attended Capalaba preschool in 1994 and it was during this year, just before turning 5, that she was diagnosed with leukaemia. Juanita was treated at the Royal Children’s Hospital for two years, followed by two and a half years of remission. In March 1999, however, she relapsed with leukaemia, and she underwent a bone marrow transplant, in August 1999. This involved about 26 days of isolation in a hospital room. She then suffered graft-vs-host disease, which meant more medication. Up until this point, she coped well, but the increase in volume of medication impacted greatly on her mentally resulting in panic attacks and a depression that never really left her. ![]() In May 2005, just when we began to think she had cleared the leukaemia, Juanita was diagnosed with a brain tumour. She had a biopsy, after which she lost much of her vision and she subsequently began treatment with radiation and chemotherapy. This extended her life for a further two years and two months. Initially the tumour responded well to chemo treatment until late January 07, when she began to suffer effects of the tumour. Beyond all expectations, she fought on for a further 7 months until finally succumbing to the tumour, passing away in hospital on the 7th August, 2007. This is a chronicle of the of Juanita’s fight for life, but more important is her passion for life. ![]() From the moment she entered this world, to the moment she left it, Juanita’s personality traits were strong and unique. Her strong mindedness was legendary within the family, and she was ever determined to have her own way. As a baby, she was nicknamed Paddy-Yup due to her two extremes of mood. One moment, she would explode in an epic tantrum, the next, she would be completely agreeable. As soon as she could talk to express her wishes, these tantrums ceased, but she always retained that determination to have her own way. ![]() Juanita was always intensely private, and kept her thoughts and fears closely guarded. Although she spoke of not wanting to die, she bottled many of her anxieties inside to spare those around her. She dealt with her fears in her own way, for instance, she covered the walls and ceiling of her room with luminous stickers of stars, planets and animals so that she was never in darkness. ![]() After her determination, her sense of humour was one of Juanita’s strongest traits. She would usually take a sideline in any discussion, but suddenly interject with a priceless one liner. At her favourite holiday spot, Lake Cootharaba, her Aunt Helen commented on the lovely silence of the bush. In her loudest voice, Juanita cried, "Shut up frogs, I can’t hear the silence!" She would even use her own illness to play jokes on her family and friends. While at the cinema with Leonie, sister Sharon and friend Megan, Juanita had a dizzy spell. She soon recovered from this, but suddenly doubled over, making horrible retching noises, then ran off towards the ladies room. Struggling with bags of popcorn, jackets, and handbags, the terrified three followed her, only to gasp with relief when they found her chuckling wickedly in a locked cubicle. Even in her final days, under the effects of strong medications to combat severe pain, her humour still shone through. ![]() Juanita had a strong spirit of adventure. With scouts, she did various activities including abseiling, canoeing, camping, rock-climbing and hiking. She had many experiences of flying in hang gliders, sail planes, an ultra-light and a World War 1 Tiger Moth biplane. Her creative side came out in her love for beading and long-stitch. Determined as ever, she persevered with the tiniest of beads and most intricate of stitches, even with failing eyesight and shaking hands. She was also an avid collector, her room strewn with hoards of plastic animals, cloth badges, hat pins and fluffy toys. ![]() Juanita had a strong interest in the world around her, and especially in animals. Throughout her life she was surrounded by animals, and her greatest pleasure was playing and spending time with her dogs and cats. As a three year old, she ‘Juanita-ized’ the two family kittens, by strapping them into a doll stroller and wheeling them around the house. The cats fought this treatment at first, but soon realised that it was easier to succumb to her will and lay placidly in the stroller. Another of her great loves was horses, especially her miniature ponies, which she took great joy in riding, driving and caring for. Even when the doctors, fearing for her safety, ordered her not to ride, she could only resist for so long, and sooner or later would insist that she be allowed in the saddle. ![]() Juanita’s fascination with animals led her to experience many of nature’s marvels. In Feb 1999, the family holidayed in Tasmania and Juanita hiked for 4 days in the cradle mountain/lake Sinclair national park. It was while camping in the cradle mountain camping grounds, that she met a wild Tasmanian Devil. One evening, David told the family about Tasmanian devils, and mentioned that they might get to see one. Not half an hour later, on a trip to the amenities, David heard Juanita call out, "Hey Dad, there’s a devil out here!" Disbelievingly, David replied, "It’s probably just a possum" but a series or snarls and growls brought everyone out of their tents. Sure enough, Juanita was right and into the camp walked a Tasmanian Devil. This experience filled her with delight, and remained a fond memory for the rest of her life. ![]() After her terminal diagnosis the family tried to fill her life with as many experiences as possible. She visited New Zealand a second time, after having visited previously thanks to the Starlight Foundation. In New Zealand, she saw the glaciers from a helicopter, had a jet boat ride at Queenstown, saw Milford Sound, and went horse riding at Lake Te Anau. She went on several more trips to see exotic animals. She swam with whale sharks and manta rays at the Ningaloo Reef in Western Australia, witnessed turtles laying eggs and hatching at Bundaberg, went whale watching at Hervey Bay, saw a wild platypus at Mackay, had a dolphin experience at Sea World and visited Perth Zoo, Australia Zoo, Taronga and Great Western Plains Zoos. Juanita had strong convictions about conservation of wildlife and especially the protection of whales. She would dearly have loved to have seen a Blue Whale and a volcano. Juanita had a lifetime of experiences in her short 18 years. Each day brought another story and memory. As the youngest, her special bond with each member of the family was a glue that helped keep us together. We remember many anecdotes of Juanita’s life, and each one is testament to her strength, humour, determination, and uniqueness. These stories will continue to make us laugh and fondly remember the beautiful soul that she was.
Every moment of our 18 years with her was precious to us. ![]() Juanita at her 18th Birthday Party, one month before she passed away.
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